Saturday 28 December 2013

Narrative essay - living with autism in a normal world

To me, normal is different than most people, I assume. Assumebecause I’m not sure what other peoples world is like. They certainly don’t behave as if they live in my world. I don’t see anyone too concerned with maintaining a calm façade while they frantically try processing millions of disturbing stimuli. It took me sixteen years to get here, why, then is a three year old better equipped to deal with these stimuli? He seems calm and relaxed. Maybe his world is different than mine.

My anguish began at birth when I first entered this frightening world. My earliest memories are of deafening noises, blindingimages and painful touches on my sensitive ears, eyes and skin. It took me two years to shut off my ears, eyes and skin. I found that if I rocked just so, no sound would interrupt my peace. If I flapped a sock with the right rhythm and looked at it through the corner of my eyes, my vision did not scare me. I enjoyed my numb existence mostly, except when it was disturbed by people trying to interrupt my rhythm.

I found one person exceptionally annoying. Although her smell and voice were vaguely comforting and familiar, she was always trying to interrupt my carefully orchestrated world. She would flash cards at me so quickly that I couldn’t help but wonder what they were. She would pipe strange sounds into my ears, but it would end before I could protest. She would rub my skin withdifferent materials saying words I was beginning to comprehend.She would make me creep and crawl to satisfy my burning curiosity to see more words and images. She never left me aloneeven if I screamed, bit, pinched or hit her.

She made me enjoy my senses by giving them a workout a few seconds at a time. Don’t get me wrong, she wouldn’t leave me in peace after a few seconds, she would just do something else with me. She never left my side from the time I got up to when I went to sleep. Slowly things became less frightening. How she did it I don’t know, but my ears, eyes and skin no longer hurt so much. I still need earplugs occasionally so I suspect my ears don’t work as well as others.

Over the years my family grew to include a sister and a brother but I never saw them as tormented as I was. I never saw my mother work with them as she still does with meI suppose my world is different from theirs. I am glad I have my annoying, persistent,lovely, gem of a mother to help me through it.

Friday 27 December 2013

Another ant another goal

Ants work and work
And I work and work
And enigma are lives remain
All this work and bustle
What for I ask
Ants are too insignificant
And what ability got ants
To change this world
They answer we have force
Enormous in numbers
What ignoramus I am
They are unroped and unfettered
And so tiny a power
And amass when they do
Bring all to a stop
Angry and totally a swarm to answer
Ants are totally a power to behold.

Sunday 15 December 2013

Really intense and interesting amazing 4 days

Therapists applied touch all over
What illness took for itself
They put it's image back
And although it flickers
Repetition should make perfection
I thank Dr. M and her army of healing hands.

Saturday 7 December 2013

Quite a treat a concert I went to

Welcome so much the invite from baba
A chance for some time together
And listening to splendid music
Delighted my ears and my heart
Reading I enjoy and music too
Mozart and baba I enjoyed a lot.