Saturday 28 December 2013

Narrative essay - living with autism in a normal world

To me, normal is different than most people, I assume. Assumebecause I’m not sure what other peoples world is like. They certainly don’t behave as if they live in my world. I don’t see anyone too concerned with maintaining a calm façade while they frantically try processing millions of disturbing stimuli. It took me sixteen years to get here, why, then is a three year old better equipped to deal with these stimuli? He seems calm and relaxed. Maybe his world is different than mine.

My anguish began at birth when I first entered this frightening world. My earliest memories are of deafening noises, blindingimages and painful touches on my sensitive ears, eyes and skin. It took me two years to shut off my ears, eyes and skin. I found that if I rocked just so, no sound would interrupt my peace. If I flapped a sock with the right rhythm and looked at it through the corner of my eyes, my vision did not scare me. I enjoyed my numb existence mostly, except when it was disturbed by people trying to interrupt my rhythm.

I found one person exceptionally annoying. Although her smell and voice were vaguely comforting and familiar, she was always trying to interrupt my carefully orchestrated world. She would flash cards at me so quickly that I couldn’t help but wonder what they were. She would pipe strange sounds into my ears, but it would end before I could protest. She would rub my skin withdifferent materials saying words I was beginning to comprehend.She would make me creep and crawl to satisfy my burning curiosity to see more words and images. She never left me aloneeven if I screamed, bit, pinched or hit her.

She made me enjoy my senses by giving them a workout a few seconds at a time. Don’t get me wrong, she wouldn’t leave me in peace after a few seconds, she would just do something else with me. She never left my side from the time I got up to when I went to sleep. Slowly things became less frightening. How she did it I don’t know, but my ears, eyes and skin no longer hurt so much. I still need earplugs occasionally so I suspect my ears don’t work as well as others.

Over the years my family grew to include a sister and a brother but I never saw them as tormented as I was. I never saw my mother work with them as she still does with meI suppose my world is different from theirs. I am glad I have my annoying, persistent,lovely, gem of a mother to help me through it.

Friday 27 December 2013

Another ant another goal

Ants work and work
And I work and work
And enigma are lives remain
All this work and bustle
What for I ask
Ants are too insignificant
And what ability got ants
To change this world
They answer we have force
Enormous in numbers
What ignoramus I am
They are unroped and unfettered
And so tiny a power
And amass when they do
Bring all to a stop
Angry and totally a swarm to answer
Ants are totally a power to behold.

Sunday 15 December 2013

Really intense and interesting amazing 4 days

Therapists applied touch all over
What illness took for itself
They put it's image back
And although it flickers
Repetition should make perfection
I thank Dr. M and her army of healing hands.

Saturday 7 December 2013

Quite a treat a concert I went to

Welcome so much the invite from baba
A chance for some time together
And listening to splendid music
Delighted my ears and my heart
Reading I enjoy and music too
Mozart and baba I enjoyed a lot.

Saturday 23 November 2013

Yearn to enhance sleeping system

Yearn to enhance sleeping system
Aiding my body, all this exertion
Enjoyable for me, work for you
Quite a solution, working on automatism
Except this body doesn't answer
Ignoring my pleas to wake up
It stays frozen to all my demands
Wake up my brain, return to me
Wake up my body, perform perfectly.

Saturday 9 November 2013

Another year

Tomorrow I turn twenty
Another decade has gone
My struggle fight continues
There is no truce no white flag
The body rebels and the brain commands
And I await the result of war
Win brain, make this body work
This decade awaits a functional Jamil.

Saturday 2 November 2013

Really delicious dinner

Pizza made especially my way
And kabob and cupcake
And so pleasing to my mouth
Every light of my day
Infused with taste
Eating l enjoy perfect food.

Sunday 27 October 2013

Oasis

Worn out senses require respite
Real break from the staccato of life
Calming and soothing lull in crowds
A welcome reprieve at a desperate time
Perhaps l go to my room to bed
Soothing sleep providing relief.

Sunday 20 October 2013

tease worst kind

my damn fingers itch
worst for me as I can't react
flaps of skin waiting to be pulled
and then I succumb quite easily
and the genius of healing
restores it right back
I enjoy the feeling that
a good sloughing will do.

tango I want to learn

perfect and opulent
full of passion and energy
worldly rythmic moves
I only wish I could do
tango is a dance
l really want to learn.

welcome salmon

a welcome dinner
lt has been an eternity
succulent salmon
grilled to perfection
perhaps you will make it for me.

yeah woe eternal to me

the anguish I feel
when hope ebbs away
world goes on and me?
I stay a polite statue
and woe washes over
waves upon waves
must people think
I have nothing to say
lf only they knew
what stays in my heart.

learn another way

the way for me wears thin for you
endless repetition and so little to show
very different inside, I know what I see
then why can't I replicate what I see
deliver the lesson that I know so well
not stand looking stymied which I abhor.

Saturday 19 October 2013

quick picking

and an entity on to itself
my work of obsession
l am too quick
l am too thorough
an annoying piece
an extra flap
of skin taunting me
and then all gone.

Toronto symphony orchestra...

the concert was fantastic
although we were far
really enjoy music
earplugs allow pleasure
sound is a joy
when muted to taste
l enjoy a perfect night out
when l go and entertain myself.

world is vast

a stunning vista
poles apart
white sand and turquoise ocean
heat and amazing sunshine
and on the same planet
at the same time
white snow, biting wind
freezing cold, weak sunlight
query l have
world, why are you so different?
although we have the same planet.

the anguish of rats

enough with raising animals
to suffer and die
we should have a better way
to teach and to learn
the students learn through simulation
on a model or computer
they will not retch or gag
and the animals will not die.

awesome show of clowns

yesterday I watched with glee
at the funny things the clowns did
enjoyed the lack of words
which did not result in
a complete loss of understanding
a model for the world that should be.

Monday 14 October 2013

allowing freedom

reasoning perhaps is impossible
this body does not listen
it freezes and stalls until you set it free
and I throw my freedom away just like that
really I wonder why I am like that
ensnaring my body and mind like that.

quite relaxed

the tense body waiting coiled
and tense spring wound so tight
worked in and not released
and twenty years I aged like that
so easing that stress till I sleep
gives blessed relief so sweet
work it and work on
enough so I relax.

perfect sunshine so amazing

totally focused on the rays
shining bright and warm
love the heat warming
melting the ice formed
inside my frigid frozen body
only two more months left
two more till the joy of spring.

cope well totally good

only I think I am getting better
loud sounds permeate still
but dominate my being less
energy until now I perhaps
use too much otherwise
and I toy mindlessly less
and listen to my surroundings
that is why I think I cope better.

Sunday 13 October 2013

yeah I am a gymnast first

education is easier when accompanied by movement
the energy spills and opens real thinking
and the roadblocks to learning fade away
then so alert I feel anew
this socially aware intense me
always I wish it lasted
this feeling of being alive.

yes until I type I am unfulfilled.

perfect reason I give you
to read about autism endlessly
researching and applying
to my mysterious body
one day it will work
l thrive on this notion
perhaps one good day
that moment will come.

the test of life

the test of life
reaching old age is difficult
light load life does not hand to many
thus going ahead on this journey
requires courage and strength
only true grit will get you through
reaching and writing the test of life.

Oasis of my mind

Oasis of my mind
Enough I sometimes feel
The stimulation I cannot bear
Loud, bright, so painful
Sore really tired I feel
Then oasis is welcome
Lost in my personal world
An energizing soothing world
An opening to bliss for me.

Sunday 1 September 2013

test my patience

these fall days
so tough to go through
so about moments of death
of the leaves of the year
the nice sunny days of summer
are gone beyond my reach
the missing sun and its warmth
the reason behind my misery
the bare branches on the trees
barren and lifeless, colorless
can I find some warmth?
can I find some color?

Saturday 31 August 2013

the loner

http://peppywrites.com/wp-content/uploads/2012/03/alone-on-beach.jpg

being locked in and like lasers for me
the line like moat that separates me
from this talking, shouting, laughing mob
and my soul takes onslaught like an attack
woebegone and so alone, like a monk
jamil opts some noise of his own
the strength obstructing, silencing all
be the mute norms, these stims of mine.

Tuesday 20 August 2013

Weird World


This world is really painfully weird

I am torn between my experiences
Good and beratedly bad
And sometimes I wonder
If this world is skewed
Answering my words
Analyzing my query
The world replies
Actually that answer
Is for people who are neurotypical
The world works, the world revolves
At their commands
According to their needs
And the weird world
And really strange people
Are the normal ones?
And what about others?
Should we keep quiet?
As this weird painful world goes on.

Monday 5 August 2013

Growth

energy it needs
learning and doing
picking a goal
working to get it
quite difficult at first
winning as a right
when working so hard
trying to quit all fear
reaching your obstacle
figuring out how
deciding to tackle
the biggest battle
I embrace the challenge
I welcome the growth.

Sunday 4 August 2013

another ant another goal

ants work and work
and I work and work
and enigma our lives remain
all this work and bustle
what for? I ask
ants are too insignificant
and what ability got ants
to change this world?
they answer we have force
enormous in numbers
what ignoramus I am?
they are unroped and unfettered
and so tiny a power
and amass when they do
bring all to a stop
angry and totally a swarm to answer
ants are totally a power to behold.

Saturday 27 July 2013

the mini

i would imagine for me
my voice got very portable
when an answer is needed
an answer will be given
tonight i must try it
tonight i begin my work
the mini works best
for vision like mine.

Saturday 13 July 2013

Effort and tangible results

The work and its results
Are directly related to
The deal I make sanely
To the effort I will make
Real work or foggy brain?
Real attention, fantastic work
Foggy brain and I get no work
Decide, but not my choosing
Decision out of my hands
And in an instant I fall prey
And I never stand a chance
As I never gained control
Whether I would really work
Or would I still be in a fog.

Saturday 6 July 2013

Allow me calmness

https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgK7hnpRlEaBppaulQRlxUyzScCyqDbCy9meMfwG508H_TV7vKc6pXTXJB-fu_Lg9C1Bwxq6FiXahsHBVNNOTU0cdoJSO9f3IOYIM6XKCGyxd7Cx6YJ5g3zWxEM6P1Y8AKrOUHOxnb5FezP/s1600/4.jpg

When rage overcomes me
I abhor the behavior
That my aberrant body
Wreaks on my family and home
That my fast anger gets better of me
Only anger is a tall order to follow
Only listless is my control on myself
I see red and lick shooting flames
Anger consumes me, not listening
To reason or pleas for calm
Would that I could, I would change
I hate when anger consumes me
I prefer to smile
I prefer to stay calm. 


Saturday 29 June 2013

Ps. We are listening.

The presumption is
You speak, you are smart
That when you don't,
Then you tease societies
Ideas of what intelligence
Really should feel like,
But can they totally ignore?
The bodies, minds and ears
So attuned to the world
So afraid to be hurt
That are listening
That are watching
Through covered ears
And peripheral eyes
So be careful with your words
We know more than you think.


Sunday 23 June 2013

The fog

https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiv4rkwo1f_K5qEc1f3iX7rr7YqDwQdMJizK9tZDe0WDOv9HIEqSOE0Vo2gesd9v99dXjR3hEblc9lomTh3ZPzT9HxqS-Z-C3x3kSjqaR7ND9FrJQUndebvOa9h_due63BPOn4PjS3CgE4/s1600/fog.jpg

Misty and foggy
Sometimes like a bog
My mind feels
Liaising with others
Too distant and indeterminate
They can barely be seen
They call to me perhaps
But the call is lost
Reaching withing myself
I live my life barely
Like a veil shrouding me
Shielding my mind and soul
From the relentless barrage
Bombarding the space around me
And so survive I naturally
And the world outside my fog.

Saturday 8 June 2013

Perfect world

A world that is perfect
Will aid all people
And abilities of all
Will carry same value
Mute, deaf , autistic and weak
All who are voiceless
Will be able to speak
And so ruminate I
An inhabitant
Of an imperfect world.

And the work begins

A symbol of lean apology
My self conscious efforts
Got to articulate perfectly
My thoughts and desires
The onus is on me
Dare go to climb mountain
The feat seems impossible
And I battle my can of snakes
Battling my war of behavior
Compelling and forbidden
And I am cornered
By my will and my compulsion
The world and me and my battle
The spoils, my sanity.

Sunday 2 June 2013

Wheat

http://www.binarytribune.com/wp-content/uploads/Commodities/ee-wheat2.jpg

Yes, I eat real wheat

Eating for me so dicy
The love that I beware of
Barrages my body works
Blocking my brain and body
Making me wonky and wild
A prisoner to my faulty digestion
And wheat being the faulty answer
To my hungry growling belly
Enough of wheat, I admit
I love you grain, but my brain doesn't 
Got to give you up
And give care to my belly.

Saturday 25 May 2013

The son

http://exodusinternational.org/wp-content/uploads/2012/06/father-and-son.jpg

The son reads the sign
It must read worthy
The son likes to see
Son is most welcome
In the natural belief
Eager, great work
What else can he do?
Making his one, classy move
Have the heart, serve the verdict
The son is like a living mystery
The son causes frowns and worry
The son causes red eyes
The son causes happiness
The son is a mystery.

Saturday 11 May 2013

The show

https://muhsadam.files.wordpress.com/2012/06/tv-new.jpg

The tv show that I like
Undeniably funny, so perfect
Tightly packed, feverishly paced
Before the show even began
The loud music, the packed fans
The anticipation and experience I excitement
Quite an experience I enjoyed
Watching afterwards I answer
Really worth the noise and the crowds
The activity of taping a tv show.

Saturday 4 May 2013

Fear

Yes, I the easy way took
The fear stopping progress
Being vacant and so safe
Making vacant and so safe
Making costs to me prohibitive
I fear and the beast hides
Yes and the beast waits
Nebulous and wicked
Residing, nesting, growing
Banking on my terror
The beast living in me
Will I conquer it
Yes I surely will finish it.

Saturday 20 April 2013

The trip to Austin

http://sojourningabroad.files.wordpress.com/2012/09/austin-city-skyline-tx-texas.jpg

Arriving in austin, I was so very excited
A new starry state I had never been to
And a chance to meet Soma at Halo
And shiny new skills for me to learn
Can she teach me new ways to master?
Work with me, accelerate mastering typing
Quirky somewhat my abilities can be
And what a master she is!
She engaged me in a lesson
I forgot to be stressed
And to my surprise
Much of my body worked
My fingers pointed
And my voice sounded
And I got some hope
That I am not stuck mute.

Saturday 6 April 2013

Bad weather

http://www.dannyst.com/wp-content/uploads/bad-weather-07.jpg

The low pressure kills me
Making my body hurt
Making my head ache
Besides my self I feel
Where switch I'd places
With someone in the sun
In an instant I would
The warmth like a balm
Soothing my aches away
Making me mindful
Oh sun! Come back!
Oh sun! I need you!

Sunday 31 March 2013

Tinted reality



I am a town liable to change
Enough that silence surrounds me
And the loud noise these crowds make
Give reason to color the world my way
The noisy world of mine in life
Becomes a world escapable
Tint a bit and store the color
Then survival is possible



Picture source: https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxh7SvSH1g93GLVFiZMbeSokoWsFGMh_dfdBpaL5b89xX7rb-bNvRDbaiW-7Ba1Kdy1FwvzDVhSDeF9fvh7gYqcWgxxOJfpkzV-LFoVlnfSJ6GnEw_qMDkssNssnNZZaxKlISvvFsco28/s1600/Illusion+of+Reality.jpg